Perception of leprosy in patients and their families

Volume 3, Issue 4, August 2019     |     PP. 70-78      |     PDF (152 K)    |     Pub. Date: August 5, 2019
DOI:    229 Downloads     7119 Views  

Author(s)

Carina Cavalcanti Nogueira Lopez, Universidade de Fortaleza (UNIFOR), Fortaleza-CE, Brazil
Luana Nepomuceno Gondim Costa Lima, Instituto Evandro Chagas. Ananindeua-PA, Brazil

Abstract
This research purpose was to verify if declines the patient´s quality of life and the disease perception by this and their families through questionnaires. It was used Dermatology Life Quality Index questionnaire in 50 patients and other semi-structured questionnaire to 21 family members attending a Reference Health Center in leprosy of Ceara, Brazil. The majority of patients reported that were little or not at all affected in different points raised. There were differences in the responses of family members according to their level of education. It was concluded that the structured questionnaire did not portray the reality of patients because in listening to these, it was noticed that they suffer in many ways, and their quality of life is affected by the disease, even with support of family and having more insight into the disease.

Keywords
Leprosy; Prejudice; Rejection.

Cite this paper
Carina Cavalcanti Nogueira Lopez, Luana Nepomuceno Gondim Costa Lima, Perception of leprosy in patients and their families , SCIREA Journal of Health. Volume 3, Issue 4, August 2019 | PP. 70-78.

References

[ 1 ] World Health Organization. Weekly epidemiological record. 2014; 89(36): 389-400.
[ 2 ] Batista TVG, Vieira CSD A, Paula MABD. - Body image in educational actions in self-care for people who had leprosy. Physis: Rev de Saúde Coletiva 2014; 24(1): 89-104.
[ 3 ] Cid RDDS, Lima GG, Souza AR, Moura ADA. - Percepção de usuários sobre o preconceito da hanseníase. Rev Rene 2013; 13(5): 1004-14.
[ 4 ] Secretaria de Saúde do estado do Ceará. Informe Epidemiológico Hanseníase. 2013.
[ 5 ] Lustosa AA, Nogueira LT, Pedrosa JI, Teles JB, Campelo V. - The impact of leprosy on health-related quality of life. Rev Soc Bras Med Trop 2011; 44(5): 621-6.
[ 6 ] Nations ML, Lira GV, Catrib AMF. - Stigma, deforming metaphors and patients´ moral experience of multibacillary leprosy in Sobral, Ceará State, Brazil. Cad. Saúde Pública 2009; 25(6): 1215-24.
[ 7 ] Lopes CB, Carmo TMD, Nascimento E, Maia MAC, Goulart MJP. - Percepções e Significados do Diagnostico e Convívio com a Hanseníase. Ciência et Praxis 2010; 3(6): 13-8.
[ 8 ] Alencar OM, Heukelbach J, Pereira TM, Barbosa JC. - Trabalho do Agente Comunitário de Saúde no controle da hanseníase. Rev. Rene 2012; 13(1): 103-13.
[ 9 ] Ekelund M1, Mallbris L, Qvitzau S, Stenberg B. - A higher score on the dermatology life quality index, being on systemic treatment and having a diagnosis of psoriatic arthritis is associated with increased costs in patients with plaque psoriasis. Acta Derm Venereol 2013; 93(6): 684-8.
[ 10 ] Rodrigues LC, Lockwood DNj. - Leprosy now: epidemiology, progress, challenges, and research gaps. Lancet Infect Dis 2011; 11(6): 464-70.
[ 11 ] Misch EA, Berrington WR, Vary JC Jr, Hawn TR. - Leprosy and the human genome. Microbiol Mol Biol Rev 2010; 74(4): 589-620.
[ 12 ] Cardoso CC, Pereira AC, de Sales MC, Moraes MO. - Leprosy susceptibility: genetic variations regulate innate and adaptive immunity, and disease outcome. Future Microbiol 2011; 6(5): 533-49.
[ 13 ] Alter A, Grant A, Abel L, Alcaïs A, Schurr E. Leprosy as a genetic disease. Mamm Genome. 2011; 22(12): 19-31.
[ 14 ] Pushpendra SP, Cole ST. - Mycobacterium leprae: genes, pseudogenes and genetic diversity. Future Microbiol 2011; 6(1): 57–71.
[ 15 ] Hall BG, Salipante SJ. - Molecular Epidemiology of Mycobacterium leprae as Determined by Structure-Neighbor Clustering. J Clin Microbiol 2010; 48(6): 1997–2008.
[ 16 ] Marinho FD, Macedo DCF, Sime MM, Paschoal VDA, Nardi SMT. - Percepções e sentimentos diante do diagnóstico, preconceito e participação social de pessoas acometidas pela hanseníase. Arq. Ciênc. Saúde 2014; 21(3): 46-52.
[ 17 ] Nunes JM, Oliveira EM, Vieira NFC. - Hanseníase:conhecimentos e mudanças na vida das pessoas acometidas.Ciência & Saúde Coletiva 2011; 16(Supl 1): 1311-8.
[ 18 ] Sá MB, Siqueira VHF. - Hanseníase, preconceito e parrhesía: Contribuições para se pensar saúde, Educação e educação em saúde. Ciência & Educação 2013; 19(1): 231-47.
[ 19 ] Palmeira IP, Queiroz ABA, Ferreira MA. - Marcas em si: vivenciando a dor do (auto) preconceito. Rev Bras Enferm 2013; 66(6): 893-900.